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The other side of leukaemia: a doctor’s perspective ...

9/27/2016

3 Comments

 
Kathryn Lang trained as a haematologist and worked in the NHS for ten years. At the beginning of this year, she took on a new role as Medical Affairs Manager at Pfizer, the global biopharmacutical company, to better inform the medical world of what haematology patients need.

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Kathryn (second from left) and her haematology team from Pfizer after running the 5k event at the European Haematology Association
I was lucky enough to find my speciality during the second year of medical school at Newcastle University. They were initiators of a study called IRIS which published in 2003. A professor gave a lecture on the new tablet that had been tested called Imatinib, which could treat chronic myeloid leukaemia, a disease that was deadly without a bone marrow transplant. When he told us that this molecular targeted therapy was the future, I was fascinated. From that point, I couldn’t conceive specialising in anything else  (and I’ve always had shaky hands so surgery wasn’t an option).
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As part of my course, I had to undertake interminably long rotations in obstetrics and surgery, among others, and found myself continually focused on the haematological parameters. I was expected to go abroad for my elective to observe medicine outside the relatively privileged western world, but I chose to stay in the UK, spending two months in the haemophilia unit of the RVI in Newcastle. It was there I first experienced the teamwork and long term relationships that haematologists develop with patients facing lifelong blood disorders.

Once qualified, I moved to Oxford to start my junior training and was lucky enough to go into a haematology/pathology rotation, where you practise medicine under the supervision of a health practitioner. I started to see the breadth of haematology and appreciate the role a haematologist plays in the hospital, not just serving patients but also supporting the medical staff. Not a day would go by without calls from surgeons concerned about clotting tests for a patient about to go in to surgery, or from GPs wanting advice on how to proceed with an unexpected test result, or a junior doctor confirming which bottle to send for a sophisticated blood test  (the answer was usually the purple top). 
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"Over the years, I developed a softened dialogue to relay complex diagnoses in an understandable way but I can’t say that I always got it right."

My first experience of life at a bone marrow transplant unit and tertiary referral centre was during my specialist training in London and Kent. I’ve always considered doctors to be in the privileged position of having a patient’s trust and have never taken that lightly. My haematology career exposed me to the highs and lows of life and have formed my experience in a profound way.  I cared for patients with illnesses that we knew would never be cured, managed existential crisis with cups of tea and long chats, cried with patients’ relatives in corridors when they couldn’t cry in front of their loved ones, and told others the fantastic news that their treatment had been successful. My career on the wards exposed me to many highs and lows which has in turn had a profound effect on my own life experience. 

By nature of the longevity of treatment for blood conditions such as leukaemia, haematology is a more personal speciality than most. A lot of medics never experience the months of contact with the same patients that those in haematology consider normal. As such, I have always been acutely aware of how my words as a doctor were taken by patients. Over the years, I developed a softened dialogue to relay complex diagnoses in an understandable way but I can’t say that I always got it right. I vividly remember some very worried faces as I tried to explain cytogenetics to patients and think back with regret at how failure to get it right may have affected the early days of their treatment. As aware as doctors are of how important their role is to a patient, due to the nature of our work, we can also be tired, grumpy, and too busy to chat more than necessary.  We try but we don’t always succeed.
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"One young prisoner I looked after with AML needed to visualise his disease and so asked me to print out pictures of leukaemic blasts to stick on his wall to fight in his mind"

While some of my memories of haematology are fogged with great sadness for the patients I’ve cared for who are no longer with us, there are others I remember fondly for different reasons: One young prisoner I looked after with AML needed to visualise his disease and so asked me to print out pictures of leukaemic blasts to stick on his wall to fight in his mind; a man with immunodeficiency and neutropenia came in on, what felt like, every night shift I did with sepsis. Three times it turned out to be due to a food borne bacterium linked to a dodgy takeaway that he refused to give up; the  patient who gave me a black eye when he panicked and punched me during a sternal bone marrow from his breast bone. And one amazing lady whose relapsed AML did not respond to the last line of therapy we had to offer asked me what she should do about the carpets in her front rooms that she didn’t like.  I cried and told her she should buy the best ones she could afford and enjoy them for as long as she could.
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Kathryn

My last two years in the NHS were spent developing a national research project in blood clotting.  It was in the stillness of this research that I reflected more on what I wanted to do with my career. Coupled with the utterly baffling and sometimes obstructive processes within the NHS, even though I’d loved my time there, I felt stifled. So I began to look into options outside of clinical medicine to see if I could better place my skills in an environment which was less rigid than, say, a typical 9-5 consultants post.

It was a string of coincidences that took me to Pfizer in February 2016, and just like the patients and doctors I’d always worked with in haematology, I found an engaging and committed team who were striving to navigate the complexities of the NHS to make sure the right medicine reached the right patients. I knew this was a role I could take on. So I joined the company in April 2016 as a medical advisor with responsibility for the haematology medicines portfolio in the UK..
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"I am grateful that my experience as a haematologist is being used in the right way in my new role, which will ultimately benefit a greater number of those in need than I could ever have helped before."
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Whilst I no longer see patients, everything I do is patient focused, from finding and interpreting new evidence, seeing doctors to find out their needs and support their development, navigating the best way to approach government bodies such as NICE to ensure innovative medicines are available to patients with haematological disease in the UK, and working with patient advocacy groups to ensure they have a voice. My work here is just as diverse and rewarding as it was in hospital.

I often reflect on the long twelve hour shifts and miss the patients and camaraderie I experienced whilst working on the ward. But I am grateful that my experience as a haematologist is being used in the right way in my new role, which will ultimately benefit a greater number of those in need than I could ever have helped before. As a global organisation with a strong patient focus, I see evidence every day of small victories for patients and feel privileged to be a part of the changing future of both medicines and haematology.



Do you know someone who has been affected by acute leukaemia?
​Would you like to share your story with us? If so, get in touch here.


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3 Comments
Julie Taylor link
10/9/2016 05:58:46 pm

Great blog. Really enjoyed reading the background to the taking on a new role. Helping patients with leukaemia, or in fact any disease is a collaborative effect of so many people. B positive is helping to inspire patients through many avenues. I've always enjoyed working with the Pfizer team over the last 15 years

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Patricia Allison
10/10/2016 09:02:51 pm

Thank you so much Kathryn for all you have done and continue to do with such dedication for patients like me and the professionals who look after us. I have CML and am very fortunate to be in the care of the wonderful team at Lincoln County Hospital, for which I am so grateful every day of my life.

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Donna Dodd
10/14/2016 11:54:44 pm

Thank you for sharing your story Kathryn. We need amazing & dedicated people like you to continue to strive to make patients lives better.
My husband was treated at St Barts in London & during his long & complex, but successful treatment for ALL, we met a lot of healthcare professionals who showed dedication at every step. I cannot miss an opportunity to say it wasn't plan sailing & I myself complained to PALs on one occasion due to poor communication. The registrar didn't get it right, she didn't respect one of our decisions but an apology went a long way. Dr Matthew Smith, a young dynamic & caring consultant, still cares for my husband now & I truely hope he knows that our lives have been totally blessed to have him leading Pauls care.
#heamooncologistcare

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